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Director, Clinical Trial & Patient Engagement

Job Posted 3/11/2025
Avidity Biosciences
San Diego, CA 92101
Category Management
Full-Time
Job Description
Job Title:

Director, Clinical Trial & Patient Engagement

Location:

San Diego, CA / Hybrid

Position type:

FLSA:

Full time

Exempt

Department:

Finance ID:

Patient Advocacy

8200-Q224-13

Strive to Bring a Profound Difference to our Patients At Avidity Biosciences, we are passionate about the impact of every employee in realizing our vision of improving people's lives by delivering a new class of RNA therapeutics. Avidity is revolutionizing the field of RNA with its proprietary AOCs, which are designed to combine the specificity of monoclonal antibodies with the precision of oligonucleotide therapies to address targets and diseases previously unreachable with existing RNA therapies. If you are a committed, solution-oriented thinker, join us in making a difference and become part of our growing culture that is integrated, collaborative, agile and focused on the needs of patients.

Avidity Biosciences, Inc.'s mission is to profoundly improve people's lives by delivering a new class of RNA therapeutics - Antibody Oligonucleotide Conjugates (AOCs ). Utilizing its proprietary AOC platform, Avidity demonstrated the first-ever successful targeted delivery of RNA into muscle and is leading the field with clinical development programs for three rare muscle diseases: myotonic dystrophy type 1 (DM1), Duchenne muscular dystrophy (DMD) and facioscapulohumeral muscular dystrophy (FSHD). Avidity is broadening the reach of AOCs with its advancing and expanding pipeline, including programs in cardiology and immunology through internal discovery efforts and key partnerships. Avidity is headquartered in San Diego, CA. For more information about our AOC platform, clinical development pipeline, and people, please visit and engage with us on LinkedIn and Twitter .

The Opportunity

We are seeking a compassionate and detail-oriented Director, Clinical Trial & Patient Engagement to join our Advocacy team. You will be a vital point of contact for patients, caregivers, and healthcare providers, ensuring that they receive the necessary information, resources, and support throughout their treatment journey with Avidity Bioscience. In this newly established role, you be a primary source of information for patient inquiries regarding Avidity's clinical programs for individuals affected by FSHD, DMD, and DM1.

What You Will Contribute
  • Patient and Caregiver Support: Provide empathetic and informed assistance to patients, caregivers, and healthcare providers, addressing their questions and concerns regarding clinical trials, therapies, and disease information. Participate in conferences and online meetings with patient community to discuss potential clinical trial participation.
  • Patient Inbox Management: Monitor, manage and track the patient inbox for inquiries related to FSHD, DMD, and DM1, ensuring timely and accurate responses to all communications. Inform internal teams on any issues or trends to continually improve patient communities' engagement with Avidity.
  • Collaboration with Internal Teams: Work closely with clinical operations, medical affairs, and other departments to ensure that patient inquiries are addressed comprehensively, accurately, and in accordance with Avidity's protocols and regulatory guidelines.
  • Referral and Resource Coordination: Assist patients and caregivers in locating and accessing additional resources such as clinical trial participation, trial locations and logistics and identifying local support groups.
  • Documentation and Reporting: Accurately document all interactions with patients, caregivers, and/or HCPs, track inquiries, and maintain organized records in compliance with company policies and HIPAA regulations.
  • Safeguard Patient Privacy: Ensure all PHI is restricted exclusively to your own role wherever possible, including in instances where escalation of a patient's inquiry is necessary to obtain additional information and abide by HIPAA guidelines by only sharing de-identified components of conversations with said patients.
  • Problem-Solving: Proactively resolve issues and escalate concerns to the appropriate team members when necessary, ensuring patients and caregivers receive timely resolutions.
  • Continuous Improvement: Provide feedback to improve processes, patient resources, and overall communication strategies, ensuring an exceptional patient experience.
What We Seek
  • Bachelor's degree in a relevant field (e.g., Nursing, Healthcare Administration, Social Work, or Life Sciences) preferred.
  • Minimum of 8 years of experience in functional area or people leadership capacity. Relevant experience will include clinical trial research, case management, patient support, or customer service settings within the healthcare or biotechnology industry. Experience with rare diseases, specifically FSHD, DMD, or DM1, is highly desirable.
  • Strong communication skills, both verbal and written, with the ability to convey complex information in an easy-to-understand manner.
  • Empathetic and patient-centered approach to service delivery.
  • Excellent organizational skills with a high level of attention to detail.
  • Ability to work independently in a fast-paced, team-oriented environment.
  • Familiarity with medical terminology, clinical trials, and healthcare systems is a plus.
  • Proficient in Microsoft Office Suite and CRM tools (Salesforce or similar).
What We Will Provide To You
  • The base salary range for this role is $218,500 - 241,500. The final compensation will be commensurate with such factors as relevant experience, skillset, internal equity and market factors.
  • Avidity offers competitive compensation and benefits, which include the opportunity for annual and spot bonuses, stock options, and RSUs, as well as a 401(k) with an employer match. In addition, the comprehensive wellness program includes coverage for medical, dental, vision, and LTD, and four weeks of time off.
  • A commitment to learning and development which includes a variety of programming internally developed by and for Avidity employees, opportunities for job-specific training offered by industry, and an education reimbursement program.
Avidity Biosciences

10578 Science Center Dr. Suite 125

San Diego, CA

92121

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